Friday, February 13, 2009

Final Economic Stimulus Bill Permits Americans' Personal Health Information to Be Sold for Research/ Public Health Purposes WITHOUT Patients' Consent

Final Economic Stimulus Bill Permits Americans' Personal Health Information to Be Sold for Research and Public Health Purposes WITHOUT Patients' Consent

/PRNewswire-USNewswire/ -- The final economic stimulus bill permits Americans' personal health information to be exchanged and sold -- without patients' consent -- for research and public-health purposes, warns the Institute for Health Freedom (Washington, DC) and Citizens' Council on Health Care (Saint Paul, MN).

The bill also mandates the plan for each American to have a single electronic health record by 2014, without opt-out or patient consent provisions.

"This bill is very misleading because while it promises to outlaw the selling of data, the exceptions to the rule are huge and allow Americans' personal health data to be exchanged and sold for research and public-health purposes without patients' consent," says Sue Blevins, president of the Institute for Health Freedom.

"This is a historical and unbelievable assault on the privacy rights of all Americans. Personal health information should not be exchanged and sold for research and public-health surveillance without patients' consent," stresses Twila Brase, president of Citizens' Council on Health Care. "Patient data belongs to the patient. A pocket full of cash should not undo a patient's right to protect their medical privacy."

Blevins adds, "Most Americans have no idea that the so-called HIPAA privacy rule doesn't give patients the freedom to give or withhold consent before their personal health information can be shared with others for many purposes. Digitizing people's health records combined with allowing researchers and public-health officials to buy their data from doctors and health plans is going to pave the way for unconsented research on millions of Americans."

These privacy advocates urge all Americans and policymakers to carefully examine the Final Conference Report, Part A on the economic stimulus bill, pdf page 296 (p. 11) and pdf pages 391-395 (pp. 106-110).

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2 comments:

  1. Will the stimulus bill compromise lower your tax rebate to $8 per week? That appears to be true. The final version has not been passed, but reports indicate the $500 per year in reduced tax withholding has been reduced to $400 per individual and $800 per couple. That only comes to $8 per week for an individual and $16 for a couple. If they start the payments in June and make it retroactive to the beginning of the year, you will get $13 per week until next January. Then, your rebate would drop to the $8 per week level. Are you felling stimulated yet? In a stimulus bill of almost $1 trillion dollars, you would think President Obama would have more for the working class.

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  2. This is absolutely sickening...what is wrong with our lawmakers that they are passing things like this through?? I would have thought that even the democrats would have more sense than to let this criminal activity take place. This is an absolute attack on Americans and on our freedom. I can only pray that God has mercy on us as a nation...God help us all.

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